Information and Resources

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The Society of Thoracic Surgeons Pediatric and Congenital Heart Disease

https://ctsurgerypatients.org/pediatric-and-congenital-heart-disease

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Congenital Heart Defects Resources - Centers for Disease Control (CDC)

https://urldefense.com/v3/__https://www.cdc.gov/ncbddd/heartdefects/links.html__;!!FMDslA!K6R5VAlQscbDgM8d2HjnA4Rcos1pRpE7fcCwllEXfSuP4AO7pu2967y37CjE6Q$

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Congenital Heart Defects Tools and Resources - American Heart Association

https://urldefense.com/v3/__https://www.heart.org/en/health-topics/congenital-heart-defects/congenital-heart-defects-tools-and-resources__;!!FMDslA!JgtcaBtmIZOX8SxNwmiRUSnB_vLMxxv61H9d7qm9ZIzYYvmVJ0Zfm51kry2M_A$

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Resources for Families Dealing With Congenital Heart Disease - US New and World Report

https://urldefense.com/v3/__https://health.usnews.com/health-care/patient-advice/articles/2018-06-26/resources-for-families-dealing-with-congenital-heart-disease__;!!FMDslA!Kox-_Q111_VooGsTtt_ztonltAojOlH_jy3j6a7kZxcL7gd889hw6H3vSeF-8Q$

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American Heart Association Heart Failure in Children and Adolescents

https://www.heart.org/en/health-topics/heart-failure/what-is-heart-failure/heart-failure-in-children-and-adolescents

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Children's Hospital of Philadelphia Congenital Heart Disease

https://www.chop.edu/conditions-diseases/congenital-heart-disease

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Nemours Kids Health Congenital Heart Defects

https://kidshealth.org/en/parents/if-heart-defect.html

 

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Community Support

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CHD Support Groups and Organizations for Heart Families

https://blog.americanmedical-id.com/2018/02/chd-support-groups-organizations-heart-families/

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National Association for Children's Heart Disorders Parent Support

https://kidswithheart.org/page/support

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Children's National Brainy Camp Heartbeat for Children with Heart Disease

https://www.brainycamps.com/

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Cardiac Neurodevelopmental Outcome Collaborative (CNOC)

https://urldefense.com/v3/__https://www.cardiacneuro.org/faq/__;!!FMDslA!JeI9sg4Hdm5keMGH-sNaKG8ax1gwx1r3agMbpyYUQVYJbIviBxaACO4_973KBQ$